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Personal Health Data in Healthcare: Important Factors Considered by Health Students-A Qualitative Study
Sjors W M Groeneveld1,2, Gaya Bin Noon3, Mathieu Figeys4
1Research Group Technology, Health & Care, School of Social Work, Saxion University of Applied Sciences, 7513 AB Enschede, The Netherlands.
Future health professionals see personal health data as key for personalized care but raise concerns about ethics and equity. Education must foster critical data literacy and ethical reflection for responsible technology integration.
Area of Science:
- Digital Health
- Health Informatics
- Medical Education
Background:
- Digital technologies and data-driven approaches are transforming healthcare towards personalized and preventive models.
- Understanding future healthcare professionals' perspectives on personal health data is crucial for health education.
- Personal health data integration necessitates examining its impact on healthcare practice.
Purpose of the Study:
- To identify factors health students deem important regarding the increasing use of personal health data in healthcare.
- To explore student perceptions of data-driven healthcare developments.
- To inform health professional education strategies for emerging technologies.
Main Methods:
- Exploratory qualitative focus group study conducted across Australia, Canada, and the Netherlands.
- Seven focus groups with 40 students from diverse health-related programs (nursing, public health, occupational therapy, social work).
- Reflexive thematic analysis of discussions on personal health data use and fictional future scenarios.
Main Results:
- Students identified personalization, prevention, and informed decision-making as benefits of personal health data.
- Concerns were raised regarding data reliability, ethical considerations, privacy risks, and potential inequalities.
- Student views were nuanced, reflecting neither pure techno-optimism nor technophobia, highlighting complex tensions.
Conclusions:
- Health professional education must integrate critical data literacy, ethical reflection, and interdisciplinary collaboration.
- Future professionals need opportunities to critically engage with the implications of data-driven technologies.
- Organizational conditions must support the responsible use of personal health data for effective implementation.
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