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Published on: January 11, 2016
Parental Perceptions of Neuropsychological Assessment in Children with Cerebral Palsy
Kristine Stadskleiv1,2, Maja Knudsen2, Sandra Julsen Hollung3
1Department of Special Needs Education, University of Oslo, Oslo, Norway.
Insights
Parental views on neuropsychological assessments for children with cerebral palsy (CP) reveal high satisfaction and perceived accuracy. Most parents felt these assessments positively impacted their child
Area of Science:
- Neuroscience
- Pediatrics
- Psychology
Background:
- Norwegian children with cerebral palsy (CP) undergo regular neuropsychological assessments.
- Parental perspectives on these crucial assessments are not well-documented.
Purpose of the Study:
- To explore parental satisfaction and perceived value of neuropsychological assessments for children with CP.
- To compare parental perceptions of cognitive function with registered diagnoses.
Main Methods:
- A survey was administered to 181 parents of children with CP.
- Survey responses were compared with data from the Norwegian Quality and Surveillance Registry for Cerebral Palsy.
Main Results:
- Parental satisfaction was not correlated with the child's IQ.
- 94% of parents found the assessment conclusions accurate or nearly accurate.
- 65% of parents believed the assessments positively influenced follow-up care. Parental perception of cognitive function aligned well with IQ scores, though a significant portion of children perceived by parents as functioning below age-expected were registered with intellectual disability (58%).
Conclusions:
- Neuropsychological assessments are generally viewed positively by parents of children with CP.
- Parental satisfaction and perceived accuracy are high, suggesting these assessments are valued.
- The study highlights the importance of considering parental perspectives in the context of diagnostic data for children with CP.
Abstract:
Norwegian children with cerebral palsy (CP) are offered regular neuropsychological assessments, but little is known about parental perspectives on the assessments. Survey responses from 181 parents were compared with data in the Norwegian Quality and Surveillance Registry for Cerebral Palsy. Parental satisfaction was not associated with the child's IQ, 94% of the parents considered the conclusion accurate/nearly accurate, and 65% believed that the assessment contributed positively to follow-up. Among 63 children reported by parents as having normal cognition, 62 had normal IQ. Among 55 children parents perceived as functioning significantly below age-expected, 32 (58%) were registered with an intellectual disability.
