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Financial fragility in adults with CHD: a report from the CHD Project to Understand Lifelong Survivor Experience
Cassidy Golden1, Caroline Shi2, Matthew E Oster3
1Obstetrics and Gynecology, https://ror.org/024mw5h28The University of Chicago Pritzker School of Medicine, USA.
Cardiology in the Young
|June 29, 2026
Summary
Adults with congenital heart disease (CHD) face greater financial fragility than their siblings. Disease severity, particularly single ventricle anatomy, increases this risk, highlighting the need for economic support.
Area of Science:
- Cardiology
- Health Economics
- Public Health
Background:
- Improved survival rates in congenital heart disease (CHD) necessitate understanding long-term implications.
- Economic impact of living with CHD into adulthood remains poorly understood.
Purpose of the Study:
- Determine prevalence and risk factors for financial fragility in US adults with CHD.
- Compare financial fragility in adults with CHD to their healthy siblings.
Main Methods:
- Cross-sectional study using the 2021-2023 CHD Project to Understand Lifelong Survivor Experience survey.
- Assessed demographics, medical history, and financial fragility.
- Used chi-square, Wilcoxon rank-sum tests, and multivariable logistic regression.
Main Results:
- Financial fragility observed in 20.6% of adults with CHD vs. 12.7% of siblings (p=0.02).
- Adults with CHD had higher odds of financial fragility (OR 1.50).
- Single ventricle anatomy was significantly associated with financial fragility (aOR 1.59).
Conclusions:
- Adults with CHD experience greater financial fragility compared to siblings.
- Disease severity, specifically single ventricle anatomy, is linked to increased financial fragility.
- Addressing financial fragility is crucial for mitigating long-term economic burdens on CHD patients and families.
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