Related Experiment Video

Updated: Jun 30, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
06:16

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Published on: June 6, 2020

Building a Community Partnership to Meet the Needs of Parents of Neurodivergent Children

Elyse R Park, Brett Goshe, Isabelle Miranda

    Progress in Community Health Partnerships : Research, Education, and Action
    |June 29, 2026
    PubMed

    Insights

    Parenting interventions for children with learning and attentional disabilities (LAD) were improved through a collaborative partnership. Co-creation strengthened the trial design and community implementation.

    Area of Science:

    • Pediatric Health
    • Intervention Science
    • Community Psychology

    Background:

    • The Supporting Parents Raising Kids trial investigated interventions for parents of children with learning and attentional disabilities (LAD).
    • The study compared a mind-body intervention (Stress Management and Relaxation Training) with a health promotion intervention (Health Enhancement Program).

    Purpose of the Study:

    • To describe the collaborative adaptation of a clinical trial and its treatments by healthcare professionals and a parent advocacy organization.
    • To detail the process of co-creating study protocols and interventions through shared decision-making.

    Main Methods:

    • Partnership between Massachusetts General Hospital and the Federation for Children with Special Needs.
    • Incorporation of professional and lived experience expertise from families of children with LAD.
    • Utilized collaborative leadership, shared learning, listening sessions, and treatment manual reviews.

    Main Results:

    • Collaborative efforts and shared decision-making led to successful adaptations in trial design and treatments.
    • Bridging cultural differences between partners was key to the successful collaboration.

    Conclusions:

    • Co-creation of research requires significant commitment and strong partnerships.
    • Collaboratively developed improvements enhance the community-based implementation of clinical trials for pediatric populations.
    Abstract

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