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Exploring Information Needs and Perspectives on a Patient Decision Aid for Biologic Therapy: A Qualitative Interview
Sharan K Rai1,2,3, Natalie McCormick1,2,3,4, Chio Yokose1,2,3
1Division of Rheumatology, Allergy, and Immunology, Massachusetts General Hospital, Boston, MA,USA.
Patient Preference and Adherence
|June 29, 2026
Summary
Patient decision aids for rheumatoid arthritis biologics are crucial. Patient stories within these tools empower individuals, enhancing shared decision-making and addressing information gaps for biologic therapy.
Area of Science:
- Rheumatology
- Health Services Research
- Patient Education
Background:
- Rheumatoid arthritis (RA) management has advanced with biologics.
- Patient hesitancy exists regarding biologic therapy.
- Patient decision aids (PDAs) can support informed choices.
Purpose of the Study:
- To investigate patient perspectives on a biologic PDA for RA.
- To explore how a PDA meets broader patient information needs in the US.
Main Methods:
- In-depth telephone interviews with 14 RA patients considering biologics.
- Iterative content analysis using grounded theory.
- Participants accessed an existing PDA before interviews.
Main Results:
- Four themes emerged: information seeking, PDA utility (patient stories), PDA limitations/solutions, and impact on decisions.
- Biologic-naive patients were included.
- Patient stories were a valued component of the PDA.
Conclusions:
- PDA design and implementation should consider patient information needs.
- Patient stories are vital for empowering shared decision-making in biologic therapy selection.
- Refined PDAs can improve the experience for RA patients considering biologics.
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