Related Experiment Video
Updated: Jul 1, 2026

Enactive Phenomenological Approach to the Trier Social Stress Test: A Mixed Methods Point of View
Published on: January 7, 2019
Meta-Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research: A
Lisa D Hawke1,2, Abigail Amartey2, Joshua Dunphy2
1University of Toronto, Toronto, Ontario, Canada.
Background:
Partnering with people with lived experience of the mental health or substance use spectrum and caregivers is a growing priority in research. There is an emerging meta-research literature on the science of engagement, but this has not been synthesised.
Objective:
This scoping review synthesises the meta-research on the science of lived experience and caregiver engagement in mental health and substance use health research.
Method:
We conducted systematic searches in PsycInfo (Ovid), MEDLINE (Ovid), CINAHL (EBSCO), and Web of Science. Articles were eligible if they presented original meta-research on lived experience/caregiver engagement in mental health and substance use health research in the past 10 years. Titles and abstracts, then full texts, were reviewed by two independent reviewers. Data were extracted into a spreadsheet and synthesised qualitatively.
Results:
Fifty-seven articles were included. The meta-research has aimed to understand experiences or needs in engagement contexts, describe or evaluate engagement groups, or develop or evaluate tools and resources to support engagement. The literature reports on positive experiences and challenges, describes approaches and new tools, and highlights opportunities for increased engagement. Papers point to the importance of improving engagement processes, structural supports and logistics.
Conclusions:
A growing body of meta-research on the science of lived experience and caregiver engagement in mental health and substance use health research remains largely descriptive in nature, rather than analytical. Research teams are encouraged to seek solutions to identified challenges and key areas of development in engagement processes, structural supports and logistics. Addressing these aspects will further advance the meta-research evidence base.
Lived Experience:
This review was conducted together with people with lived experience, including co-authorship.
Related Concept Videos
The Scientific Method in Nursing Process
When using research findings to change practice, one must understand the process used to guide a study. The scientific method is a systematic, step-by-step process that supports the data's validity, reliability, and generalizability. As a result, findings can be safely...
Community Based Intervention
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
Psychology as a Science
The scientific method in psychology involves six critical steps: making observations, formulating hypotheses, conducting tests, analyzing...
Altered States of Awareness
The ingestion of substances like stimulants or hallucinogens leads to chemical alterations in the brain that...
Ethics in Research
Dimensions of Health and Illness