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Knowledge Gaps and Barriers to Care in Men with Postprostatectomy Incontinence: Evidence from the German ProKontinenz
Viktoria Menzel1, Christoph Kowalski2, Sophie Klara Schellack2
1Department of Urology, Medical Faculty Carl Gustav Carus TU Dresden, Dresden, Germany.
More than half of men with postprostatectomy incontinence (PPI) lack knowledge of surgical treatments. Information gaps and symptom severity contribute to this, highlighting the need for better clinician-patient communication about effective surgical options for PPI.
Area of Science:
- Urology
- Surgical Oncology
- Patient Quality of Life
Background:
- Postprostatectomy incontinence (PPI) significantly impacts quality of life for many men.
- Despite effective surgical interventions, PPI remains undertreated, indicating a potential care gap in Europe.
- This study investigates patient awareness and barriers concerning surgical treatments for PPI.
Purpose of the Study:
- To assess the level of knowledge regarding surgical treatment options for persistent postprostatectomy incontinence (PPI).
- To identify barriers preventing patients from seeking or undergoing surgical treatment for PPI.
- To explore the association between symptom burden, quality of life, and knowledge of surgical interventions.
Main Methods:
- A cross-sectional analysis of the ProKontinenz trial involving men with persistent PPI for over 12 months post-radical prostatectomy.
- Validated questionnaires and a 24-hour pad test were used to collect data on patient knowledge, information sources, and treatment barriers.
- Logistic regression analysis was employed to identify predictors associated with a lack of knowledge about surgical PPI treatments.
Main Results:
- Fifty-nine percent of participants reported no knowledge of surgical treatments for PPI.
- Key barriers to considering surgery included satisfaction with incontinence products (79%), concerns about surgical risks (53%), and doubts about surgical success (51%).
- Lack of knowledge was independently associated with lower symptom severity, concerns about treatment success, and insufficient information from urologists.
Conclusions:
- A significant proportion of men with persistent PPI are unaware of potentially effective surgical treatment options.
- Information deficits and symptom perception play a crucial role in treatment knowledge and uptake.
- Enhancing guideline-based information dissemination and improving clinician-patient communication are essential to address this knowledge gap and improve PPI management.
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