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Published on: August 5, 2017
Health professionals' views and experiences of Fetal Alcohol Spectrum Disorder (FASD): "If we're not thinking FASD,
Miranda Eodanable1, Sinead Rhodes2, Katie Cebula1
1Moray House School of Education and Sport, University of Edinburgh, Edinburgh, UK.
Background:
Low diagnostic rates of Fetal Alcohol Spectrum Disorder (FASD) persist in the United Kingdom. This qualitative study explored clinicians' views about the FASD diagnostic process, post-diagnostic supports and disability identity formation.
Method:
Twenty-five clinicians across NHS Scotland were interviewed online about: FASD knowledge and training; clinical practice; facilitators and barriers in FASD practice; and diagnostic impact on young people's self and disability identity. Data were analysed using reflexive thematic analysis.
Results:
Clinician views and compassionate practice were framed by their training, professional role, and service type. In the FASD diagnostic process, clinicians valued their role in supporting people's self-understanding and access to supports. Diagnostic practice was impacted by ethical concerns for the biological parent/child relationship and broaching FASD and disability.
Conclusion:
Multidisciplinary and neurodevelopmental assessment services can support complexity in FASD practice. Clinician roles in diagnostic practice can contribute to positive experiences of diagnosis, disability, and identity for young people.
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