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England's Dementia Diagnosis Landscape: Strengths, Limitations, and Future Directions
Jemma Hazan1,2, Robert Howard1,2, Jeremy D Isaacs3,4
1Division of Psychiatry, University College London, London, UK.
Background:
The National Health Service (NHS) England Primary Care Dementia Data (PCDD) provides a comprehensive dementia registry, underpinning national policy to improve diagnosis, care, and support.
Methods:
This paper evaluates the PCDD in comparison with international quality dementia registries (SveDem, NorCog, ADNeT).
Results:
We highlight strengths in PCDD coverage and case ascertainment, but also weaknesses in diagnostic specificity and post-diagnostic metrics.
Conclusions:
We review currently collected metrics and discuss potential data expansions, including dementia severity and NICE-approved therapy uptake, alongside new targets, such as an 18-week standard for memory assessment service referrals.
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