'I have no idea who does the bone thing': a qualitative exploration to improve osteoporosis care
Anne Heaven1, Nicola Kime2, Shabana Shafiq2
1Academic Unit for Ageing and Stroke Research, Bradford Institute for Health Research, Bradford Teaching Hospitals NHS Foundation Trust, Bradford, UK anne.heaven@bthft.nhs.uk.
Background:
The Women's Health Strategy for England highlighted the systemic underrepresentation of older women in health care. Over half of women >80 years are estimated to have osteoporosis, contributing to 180 000 fractures annually in the UK, with substantial personal and economic costs, despite clinically effective treatments and national guidelines being available.
Aim:
To use insights from the experiences of older women and primary healthcare professionals to develop strategies to improve osteoporosis care.
Design And Setting:
A community-based qualitative study in England, UK.
Method:
Interviews were undertaken with 30 community-dwelling older women (aged ≥70 years) diagnosed with osteoporosis and 31 healthcare professionals including GPs, physiotherapists, pharmacists, practice nurses, a healthcare assistant, and a community matron. We reviewed findings iteratively with our coproduction group using a constructivist grounded theory approach.
Results:
Healthcare professionals acknowledged osteoporosis as clinically important but described limited knowledge and understanding. However, older women assumed expertise and proactive engagement from clinicians. Older women normalised symptoms as part of ageing, frequently prioritising other comorbidities. Most were unclear about their diagnosis, prognosis, or treatment plans. Self-management was expected but inadequately supported. There was little routine engagement with the wider primary care team. Digital communication further limited older women's engagement/re-engagement.
Conclusion:
Osteoporosis remains poorly understood and inadequately managed in older women who face barriers, including multimorbidity, digital exclusion, and low self-efficacy. Many older women accept care gaps owing to limited awareness and lack of meaningful interaction with healthcare professionals. Improved care navigation and greater involvement of the wider primary care team could enhance engagement and support better self-management.
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