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Adopting common data elements for the National Trauma Research Repository through a consensus meeting: the trauma
John David Cull1, Pamela J Bixby2, Nee-Kofi Mould-Millman3
1Surgery, Prisma Health Upstate, Greenville, South Carolina, USA.
Researchers established 10 core trauma common data elements (CDEs) to improve data collection and analysis in trauma research. This initiative aims to enhance data interoperability and advance trauma science for better patient outcomes.
Area of Science:
- Trauma research
- Data science
- Public health
Background:
- Trauma is a leading cause of death and disability in the USA.
- Inconsistent data collection standards hinder trauma research, data aggregation, and interoperability.
- Standardizing data collection is crucial for advancing trauma science and improving patient outcomes.
Purpose of the Study:
- To identify and implement a core set of common data elements (CDEs) for universal use in trauma research.
- To advance trauma science and improve patient outcomes through standardized data collection.
- To foster data aggregation and interoperability in trauma research.
Main Methods:
- A consensus-driven methodology guided by ACCORD reporting standards was employed.
- A CDE Steering Committee comprising military, civilian, and academic trauma experts was established.
- Existing trauma and traumatic brain injury CDEs were systematically compared, harmonized, and refined using informatics tools and expert feedback.
Main Results:
- A final set of 10 core trauma CDEs was approved for inclusion in the National Trauma Research Repository (NTRR) v2.
- The approved CDEs are categorized under demographics and injury characteristics.
- An additional 22 elements were referred to domain-specific workgroups for future development.
Conclusions:
- Adoption of these core trauma CDEs will support harmonization across trauma studies, enabling data reuse, pooled analysis, and cost-efficient research.
- Successful implementation requires endorsement from funders and institutions.
- Future work includes developing therapeutic area-specific CDEs and promoting CDE adoption through training and support.
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