Experiences of Children Undergoing Peritoneal Dialysis: A Descriptive Phenomenological Study

Eda Demir1, Duygu Sönmez Düzkaya2

  • 1Mersin University Hospital, Child Health and Diseases 2nd Service, Mersin, Türkiye.

Insights

Children on peritoneal dialysis face significant emotional, physical, and psychosocial challenges. Improving family-centered care and support systems is crucial for their well-being.

Area of Science:

  • Pediatric Nephrology
  • Psychosocial Health
  • Qualitative Research

Background:

  • Peritoneal dialysis is a key treatment for pediatric kidney failure.
  • Children on peritoneal dialysis experience significant, yet under-documented, challenges.
  • Understanding the child's perspective is vital for effective care.

Purpose of the Study:

  • To explore the lived experiences of children undergoing peritoneal dialysis.
  • To inform family-centered nursing care strategies.
  • To enhance psychosocial support for pediatric patients.

Main Methods:

  • Descriptive phenomenological design.
  • Semi-structured interviews with 10 children (aged >7) on peritoneal dialysis for ≥1 year.
  • Colaizzi's seven-step analysis using MAXQDA software.

Main Results:

  • Key themes: emotional responses, physical burden, social/school disruption, family dynamics, coping.
  • Commonly reported: fear, sadness, stress, abdominal pain, nausea, sleep issues.
  • Significant social isolation, school absenteeism, and peer relationship difficulties.

Conclusions:

  • Children undergoing peritoneal dialysis face substantial emotional, physical, and psychosocial burdens.
  • Family-centered nursing care is essential for improving patient outcomes.
  • Routine psychological screening, school liaison, and peer support are recommended.
Abstract

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