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Action for Access: Equity for Children With Disabilities in Lowand Middle-Income Countries
Emilee Flynn1, Megan S McHenry2, Barnabas Kigen3
1Division of Palliative Care Medicine Emory School of Medicine Department of Pediatrics and Children's Healthcare of Atlanta, Atlanta, Georgia.
Insights
Globally, 16% of people have disabilities, but diagnosis and access to care are challenging, especially in low-income nations. Pediatricians can advocate for improved healthcare, education, and resources for children with disabilities worldwide.
Area of Science:
- Global Health
- Disability Studies
- Pediatrics
Background:
- Significant disability affects 16% of the global population, though this figure may be an underestimate.
- Lack of a universal definition and validated diagnostic tools hinders accurate identification, particularly in low- and middle-income countries (LMICs).
- Limited access to specialized healthcare and community resources, compounded by distance and cost, poses challenges for individuals with disabilities and their families.
Purpose of the Study:
- To highlight the global disparities in disability diagnosis and resource allocation.
- To emphasize the need for improved frameworks and equitable application of support for people with disabilities.
- To identify actionable roles for pediatricians in advocating for children with disabilities.
Main Methods:
- Review of existing global health frameworks and disability definitions.
- Analysis of resource accessibility and healthcare challenges in LMICs.
- Identification of key areas for pediatrician intervention.
Main Results:
- Disability prevalence is high, yet diagnostic and treatment resources are inequitably distributed globally.
- Existing international frameworks for inclusion are not consistently implemented, especially affecting LMICs.
- Pediatricians are crucial in advocating for comprehensive support systems for children with disabilities.
Conclusions:
- Addressing the global disability crisis requires standardized definitions, improved diagnostic tools, and equitable resource distribution.
- International frameworks must be effectively implemented to ensure inclusion and access for all individuals with disabilities.
- Pediatricians have a vital role in advocating for healthcare, education, assistive technology, psychosocial support, and policy changes for children with disabilities.
Abstract:
Sixteen percent of the world's population experiences significant disability. This is likely an underestimation, as there is not a uniformly accepted definition of disability and there are limited validated tools to support clinicians in their diagnoses, especially in low- and middle-income nations. Even when a diagnosis is made, access to specialized health care and community resources is limited, with increased travel distances and high cost of services presenting additional challenges for patients and families. The World Health Organization and the United Nations have provided additional frameworks for supporting physical access and social inclusion for people living with disabilities. However, these frameworks remain inequitably applied with individuals living in low- and middle-income countries experiencing both the largest burden of disease and the fewest resources. Pediatricians can take action to ensure adequate access to health care, education, assistive technology, psychosocial support, and policy action for children with disabilities around the world.
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