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Documentation in Long-Term and Home Healthcare Setting01:29

Documentation in Long-Term and Home Healthcare Setting

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Related Experiment Videos

Reshaping long COVID care through patient-reported needs.

Jovana Milic1, Anna Pelizzoni2, Licia Gozzi1

  • 1Department of Surgical, Medical, Dental and Morphological Sciences, University of Modena and Reggio Emilia, Largo del Pozzo, 71, Modena, 41124, Italy.

BMC Infectious Diseases
|July 7, 2026
PubMed
Summary

Long COVID care has significant gaps, with many patients experiencing unmet clinical and psychological needs. Reorganizing services around patient clusters can improve perceived health and well-being.

Keywords:
Long COVIDPatient-centered careQuality of lifeUnmet needs

Related Experiment Videos

Area of Science:

  • Medical Research
  • Public Health
  • Patient Care

Background:

  • Long COVID is a complex multisystem condition with persistent symptoms post-SARS-CoV-2 infection.
  • Existing healthcare delivery often fails to align with the evolving needs of Long COVID patients.
  • Understanding patient needs is crucial for optimizing Long COVID services.

Purpose of the Study:

  • To assess unmet clinical, psychological, and lifestyle needs in Long COVID patients.
  • To identify gaps between patient requirements and current healthcare provisions.
  • To inform a patient-centered redesign of Long COVID services.

Main Methods:

  • An observational study involving patients assessed at the Modena Long COVID Clinic.
  • An online questionnaire surveyed unmet needs across clinical, mental health, welfare, and lifestyle domains.
  • Health-related quality of life was measured using EQ-5D-5L and EQ-VAS, comparing baseline and follow-up data.

Main Results:

  • 80.1% of respondents reported Long COVID symptom clusters, with notable increases in musculoskeletal, neurocognitive, and psychological domains.
  • While health-related quality of life scores remained stable, self-rated health improved.
  • Significant unmet needs were identified, including insufficient access to specialist consultations and psychological support, and inadequate pain management.

Conclusions:

  • Substantial discrepancies exist between patient needs and current Long COVID care structures.
  • A dynamic, cluster-based, and patient-centered approach is essential for service redesign.
  • Proposed service reorganization includes functional triage, patient empowerment, integrated clinics, case management, and outcome evaluation.