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Published on: April 22, 2015
Understanding Autism: Sikh Caregivers' Perceptions on Autism
Haley Clark1, Jordan Shurr1, Baljit Ghuman1
1Faculty of Education, Queen's University, Kingston, Canada.
Education and Training in Autism and Developmental Disabilities
|July 8, 2026
Summary
Sikh caregivers of autistic children face significant barriers due to cultural stigma and lack of resources. Improving cultural competence in education and community awareness is crucial for better support for these families.
Area of Science:
- Autism Spectrum Disorder (ASD) research
- Cultural competence in healthcare and education
- Caregiver support systems
Background:
- Caregivers of autistic children encounter systemic barriers to services.
- These barriers are often amplified for minority populations.
- Limited research exists on the specific experiences of Sikh caregivers of autistic children.
Purpose of the Study:
- To investigate the experiences and perspectives of Sikh caregivers of autistic children.
- To examine cultural awareness and educational support needs within this demographic.
- To identify barriers hindering access to services and support.
Main Methods:
- A mixed-methods approach was employed.
- Data collected through a survey (n=113) and focus groups (n=11).
- Analysis focused on understanding caregiver beliefs, community perceptions, and identified challenges.
Main Results:
- A significant gap exists in autism knowledge between individual caregiver beliefs and perceived community beliefs.
- Persistent cultural stigma, misconceptions, language barriers, and a lack of culturally relevant resources were identified.
- These factors collectively impede caregivers' access to essential support services.
Conclusions:
- There is a critical need for enhanced cultural competence in educational and support practices.
- Increased community awareness is essential to foster understanding and reduce stigma surrounding autism.
- Improving support systems for autistic individuals and their caregivers within the Sikh community is paramount.
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