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Patient and public perspectives of involvement in CV research in Scotland: Heart Engagement And Research Talks
Sheona McHale1, Alice Pearsons1, Coral Hanson2
1Research Fellow.
Insights
Patient and public involvement (PPI) in cardiovascular research faces barriers in communication, commitment, and feeling valued. Hybrid events enhance inclusivity, but careful planning is essential for effective patient engagement in research.
Area of Science:
- Cardiovascular research
- Health services research
- Patient and public involvement (PPI)
Background:
- Cardiovascular disease (CVD) is a major global health concern.
- Effective patient and public involvement (PPI) is vital for relevant cardiovascular research.
- Barriers to PPI can hinder research progress and impact.
Purpose of the Study:
- To explore barriers and enablers to PPI in cardiovascular research.
- To identify key themes influencing successful PPI.
- To assess the utility of hybrid event formats for PPI.
Main Methods:
- A hybrid event was organized, bringing together patients, researchers, and stakeholders.
- Interactive sessions facilitated discussions on PPI barriers and enablers.
- Qualitative and quantitative data were collected on communication, commitment, and value.
Main Results:
- Communication challenges require clear, accessible information for research participants.
- Commitment barriers include practical issues like cost, travel, and time.
- Participants emphasized the importance of feeling valued and recognized for their experiences.
Conclusions:
- PPI is crucial for enhancing cardiovascular research quality.
- Hybrid events can improve inclusivity in PPI initiatives but require meticulous planning.
- Addressing communication, commitment, and value is key to fostering meaningful PPI.
Abstract:
Cardiovascular disease (CVD) is a leading cause of global mortality, necessitating extensive research efforts. In Scotland, the NHS Research Scotland (NRS) Cardiovascular Network plays a pivotal role in coordinating cardiovascular research. Patient and public involvement (PPI) is crucial for shaping meaningful research strategies, yet barriers to such engagement persist. We organised a hybrid PPI event, bringing together patients, researchers, and stakeholders. Interactive sessions explored barriers and enablers of PPI. Qualitative and quantitative data were collected, focusing on communication, commitment, and value as key themes. Participants highlighted communication challenges, emphasising the need for clear, accessible information about research involvement. Commitment barriers included costs, travel, and time constraints. Feeling valued as research participants was essential, emphasising recognition of diverse experiences. Running the event as a hybrid facilitated broader participation, employing professional notetakers, British sign language (BSL) interpreters, and moderators. In conclusion, holding this event emphasised the importance of PPI in cardiovascular research, outlining communication, commitment, and value as key facets. Hybrid events enhance inclusivity but demand careful planning. Meaningful PPI, as exemplified in this study, informs and enhances research quality, underscoring the need for continued investment in patient involvement initiatives.
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