Patient and public perspectives of involvement in CV research in Scotland: Heart Engagement And Research Talks

Sheona McHale1, Alice Pearsons1, Coral Hanson2

  • 1Research Fellow.

Insights

Patient and public involvement (PPI) in cardiovascular research faces barriers in communication, commitment, and feeling valued. Hybrid events enhance inclusivity, but careful planning is essential for effective patient engagement in research.

Area of Science:

  • Cardiovascular research
  • Health services research
  • Patient and public involvement (PPI)

Background:

  • Cardiovascular disease (CVD) is a major global health concern.
  • Effective patient and public involvement (PPI) is vital for relevant cardiovascular research.
  • Barriers to PPI can hinder research progress and impact.

Purpose of the Study:

  • To explore barriers and enablers to PPI in cardiovascular research.
  • To identify key themes influencing successful PPI.
  • To assess the utility of hybrid event formats for PPI.

Main Methods:

  • A hybrid event was organized, bringing together patients, researchers, and stakeholders.
  • Interactive sessions facilitated discussions on PPI barriers and enablers.
  • Qualitative and quantitative data were collected on communication, commitment, and value.

Main Results:

  • Communication challenges require clear, accessible information for research participants.
  • Commitment barriers include practical issues like cost, travel, and time.
  • Participants emphasized the importance of feeling valued and recognized for their experiences.

Conclusions:

  • PPI is crucial for enhancing cardiovascular research quality.
  • Hybrid events can improve inclusivity in PPI initiatives but require meticulous planning.
  • Addressing communication, commitment, and value is key to fostering meaningful PPI.

Related Concept Videos

Assessment of the Cardiovascular System I: Subjective Data01:23

Assessment of the Cardiovascular System I: Subjective Data

A thorough health history and physical assessment are essential for identifying cardiovascular disease (CVD) symptoms and distinguishing them from other health issues.
Initial Enquiry
Ask the patient about their primary concern and thoroughly explore all reported symptoms.
Medical History
Investigate past illnesses affecting the cardiovascular system, such as angina, anemia, rheumatic fever, congenital heart disease, stroke, thrombophlebitis, dysrhythmias, varicosities
Inquire about symptoms...
Patient-centered Care01:13

Patient-centered Care

Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
Ethics in Research01:56

Ethics in Research

Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
Clinical Trials: Overview01:11

Clinical Trials: Overview

Clinical development focuses on how the drug will interact with the human body and encompasses four key phases of clinical trials, each serving a specific purpose in assessing the safety and effectiveness of new drugs. These phases overlap and build upon one another. Phase I involves a small group of healthy volunteers (typically 20-80 individuals) or, in cases where significant toxicity is expected, patients with the targeted disease, such as cancer or AIDS. The volunteers are tested for...
Peripheral Artery Disease III: Interprofessional Care01:27

Peripheral Artery Disease III: Interprofessional Care

Peripheral Artery Disease (PAD) is characterized by narrowed arteries that diminish blood flow to the extremities. Effective management of PAD requires an interprofessional approach involving various healthcare professionals. The critical aspects of interprofessional care for PAD patients focus on risk factor modification, drug therapy, exercise therapy, nutrition therapy, critical limb ischemia care, and interventional radiology and surgical procedures.The primary treatment goal for PAD...
Types of Biopharmaceutical Studies: Controlled and Non-Controlled Approaches01:23

Types of Biopharmaceutical Studies: Controlled and Non-Controlled Approaches

Biopharmaceutical studies constitute a vital field aiming to enhance drug delivery methods and refine therapeutic approaches, drawing upon diverse interdisciplinary knowledge. In research methodologies, the choice between controlled and non-controlled studies significantly influences the study's reliability and accuracy.
Non-controlled studies, commonly employed for initial exploration, lack a control group, rendering them susceptible to biases and external influences. In contrast, controlled...