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Patient and Public Involvement around the world: where we are and where Brazilian research needs to go
Paula Silva de Carvalho Chagas1, Christina Danielli Coelho de Morais Faria2, Andrea Cross3
1Faculdade de Fisioterapia, Universidade Federal de Juiz de Fora, Minas Gerais (MG), Brazil.
Background:
Patient and Public Involvement (PPI) in research is defined as "research being carried out 'with' or 'by' members of the public rather than 'to', 'about' or 'for' them". This importance of PPI has significantly grown with worldwide advances in access to information, changes in the models of care provided toward patient-centered care, and the urge to hear their voices.
Objective:
This masterclass aims to provide a critical overview of patient and public involvement in research, examining current international practices and reflecting on future directions and challenges for strengthening PPI in Brazil.
Discussion:
This masterclass explores the definitions of PPI used worldwide and how the patient and public can be involved in all stages of the research cycle. The uptake of PPI in research around the world has grown in the last 20 years, but with little expression in low- and middle-income countries (LMIC). Strategies to enhance the use of PPI in countries like Brazil must be provided with knowledge translation, funding, training, and awareness of the importance of patient and public involvement.
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