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Working with Human Tissues for Translational Cancer Research
Published on: November 26, 2015
The Paused Pathway: Teaching Investigative Consent when Cancer Investigation Stalls
Waseem Jerjes1, Sarah Williams2, Austen El-Osta3
1School of Public Health, Faculty of Medicine, Imperial College London, London, UK. waseem.jerjes@nhs.net.
Abstract:
Suspected cancer pathways are often taught as linear sequences, but in practice they may pause when patients miss appointments, decline investigations, misunderstand the pathway, or face emotional, practical, relational or access-related barriers. This article proposes investigative consent as a teachable cancer education skill. Investigative consent means helping patients understand not only a proposed test, but the diagnostic journey it may open, including uncertainty, follow-up, alternatives, and the distinction between diagnosis and treatment. For learners, a paused pathway should not be reduced to "patient declined" or "did not attend". Instead, it should prompt careful enquiry into what has been declined, why, by whom, and with what understanding. Teaching should emphasise clarification rather than persuasion, explicit ownership of follow-up, equity-sensitive adaptation, and respectful documentation of settled refusal. Reframing the paused cancer pathway as a learning event can strengthen patient-centred cancer communication and safer continuity of care.
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