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Differences and Similarities Between Experiences of Mothers and Fathers of Children With Type 1 Diabetes Mellitus: A
Dilek Uludaşdemir1, Tuğba Bilgehan2
1Department of Child Health and Disease Nursing, Faculty of Health Sciences, Ankara Yildirim Beyazit University, Ankara, Turkey.
Aim:
Management of paediatric type 1 diabetes mellitus (T1DM) requires a continuous and comprehensive care process that has a profound impact on family life dynamics. Understanding the heterogeneous experiences of parents is critical to optimizing children's adherence to treatment plans. The aim of the research was to determine the differences in the experiences of mothers and fathers of a child with T1DM.
Design:
This study, using a qualitative phenomenological design, was performed with 10 mothers and 10 children diagnosed with T1DM.
Methods:
Research data were collected with a survey form and a semi-structured interview form. Data were analysed with the Nvivo 12 program.
Results:
The research identified three main themes of challenges, facilitators, and emotions related to the experiences of parents of children with T1DM. Mothers experienced more challenges about topics like the pain of finger pricks, not being able to find support, and diabetic nutrition, while fathers experienced challenges like financial burden and not being able to take leave from work. Both groups experienced similar emotions like shock, sadness, and fear of loss.
Conclusions:
It is recommended to design psychosocial support programs for families of children with T1DM by noting the different experiences of parents. Strengthening mothers and fathers will ensure healthier management of the child's diabetes.
Implications For Nursing Practice:
Nurses should adopt family-centered approaches that support the active involvement of not only mothers but also fathers in the care process, alongside attending to the physical health of the child.
Patient Or Public Contribution:
Mothers and fathers of children diagnosed with T1DM were interviewed and involved solely as research participants in the study.
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