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Published on: May 29, 2020
Lonely in place? The intersection of loneliness and place in the chronic illness experience
Maja Lindegaard Moensted1, Sophie Lewis2, Karen Willis3
1Addiction Medicine, Central Clinical School, Faculty of Medicine and Health, University of Sydney, Australia; Edith Collins Centre (Translational Research in Alcohol, Drugs and Toxicology) Sydney Local Health District, Australia.
Abstract:
Place significantly impacts health and belonging, yet little is known about how place and loneliness intersect for people with chronic conditions. This qualitative study examined how people with chronic illness experience places in their daily lives, and how these place-based experiences shape feelings of loneliness. We conducted in-depth interviews, walking interviews and photo-elicitation with 40 participants across urban and regional Australia, analysing how place relationships intersected with loneliness and illness experiences. Our analysis revealed three distinct patterns. 'Effortless belonging' characterised those with pre-existing advantages (spatial stability, economic security, established networks) who maintained unconscious protective buffers against loneliness through deep place familiarity despite illness. 'Strategic spatial negotiation' described participants who actively curated place engagement - using home as refuge during symptomatic periods while selecting accessible public spaces to maintain social identity. 'Geographic disenfranchisement' emerged where chronic illness compounded structural vulnerabilities (poverty, housing instability, marginalisation) creating compromised place connections where locality intensified rather than alleviated loneliness. Findings reveal chronic illness fundamentally but not uniformly reshapes place-loneliness relationships by intersecting with existing structural conditions to create divergent spatial experiences. For participants with structural advantages, bodily vulnerabilities were buffered by stable place connections, while those with pre-existing disadvantages experienced chronic illness as compounding spatial marginalisation. Strong place attachment could coexist with spatial constraint, particularly in disadvantaged areas, challenging assumptions about the inherent benefits of place belonging. Findings underscore the need for spatially-informed interventions addressing structural inequalities (housing instability, inaccessible spaces, socioeconomic disadvantage) that determine whether chronic illness becomes a pathway to place-based connection or disconnection.
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