[Data on disability, health and participation in Germany-an update]

Reliable population-based data are needed to identify policy needs regarding the health and participation of people with disabilities that are also in line with the UN Convention on the Rights of Persons with Disabilities. This article contains an update of an overview of relevant data sources in Germany published in 2016.Population-based studies/surveys, official statistics and process data from 2015 onwards were researched. The data sources had to be suitable for health reporting (Gesundheitsberichterstattung, GBE)-in particular, they had to be population-based, be collected regularly, be readily available and comply with the recommendations of the preliminary study for the participation survey. The tiered concept described there was used for categorisation.Twelve studies/surveys, five official statistical data sources and two process data sources were identified that contain data on the health and participation of people with disabilities with different focuses and varying breadth and depth. Compared to the previous overview, the participation survey has been added as a central data source. There are gaps, particularly in data sources on children and young people.In Germany, there is quite a large number of regularly collected data sources on disability, health and participation, the potential of which has not yet been fully exploited for analyses and reporting. Participation in studies should be barrier-free, and the use of standard instruments or the integration of a short instrument on participation into the surveys would be useful. A set of core indicators for GBE could support the evidence-based identification of areas where action is needed.