Related Experiment Videos
Changing the Sickle Cell Nutrition Integration Narrative: Qualitative Perspectives From Sickle Cell Service
Claudine Matthews1, Adrian Brown2,3,4, Michelle Hawkins1
1Anglia Ruskin University, Faculty Health, Medicine and Social Care, Bishops Hall, Chelmsford, UK.
Introduction:
Nutrition is not currently integrated into standard care provision in sickle cell disease (SCD) impacting patients experience, access and outcomes of nutrition. The lack of understanding of the nutritional needs in SCD and its impact on patient outcomes requires exploration to integrate nutrition into clinical practice. However, there is a paucity of qualitative studies conducted with sickle cell service users/carers to explore their views, knowledge and experiences of nutritional care and the influencing factors affecting nutrition integration in SCD care.
Methods:
An independent focus group involving SCD service users and carers formed part of a larger four phased participatory sequential Learning Alliance study conducted between March and December of 2020. Purposive sampling was used to recruit suitable adult sickle cell service users/carers (n = 11) to participate in this UK based study.
Results:
Four main themes were generated including 1) The invisibility of SCD, 2) Under -recognised importance of nutrition, 3) Lack of priority to nutrition and 4) Multi-level factors affecting nutrition and service provision that underscore key knowledge and care gaps in addition to an array of influencing factors affecting nutrition integration in SCD. Moreover, these themes reflect the complexity of sickle cell nutrition and the impact of the lack of nutrition integration on SCD patients access and outcomes of nutrition.
Conclusion:
The main findings provide evidence of the nutrition knowledge and care gaps in SCD and the need to address the under-recognition and lack of priority to nutrition, driving the lack of nutrition integration and poor patient outcomes in SCD.
Related Concept Videos
01:28Chronic Kidney Disease III: Interprofessional Care
01:20Taste Buds and Receptors
01:27Nursing Ethical Principles II
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's cancer...
01:27Nursing Clinical Information System
A Nursing Clinical Information System (NCIS) is a specialized type of healthcare information system tailored to meet the unique needs of nursing practice. It incorporates the principles of nursing informatics to streamline information management and improve the quality of care delivery.
Critical attributes of NCIS include:
01:30Inflammatory Bowel Disease III: Diagnostic Studies and Management I-Nutritional Therapy
Diagnostic studies
A colonoscopy is the definitive screening test, distinguishing ulcerative colitis from other colon diseases with similar symptoms. During a colonoscopy test, inflamed mucosa with exudate ulcerations can be observed, and biopsies are taken to determine the histologic characteristics of the colonic...
01:27Parentral Nutrition: Centeral and Peripheral Parental Nutrition
PN can be administered through two primary routes:
1. Central Parenteral Nutrition (CPN):
CPN involves delivering a high concentration of nutrients through a large vein. This is typically achieved using a Peripherally Inserted Central Catheter (PICC) or,...