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Reinterpreting words and making connections: an experience with an educational book about childhood cancer
Simone Lehwess Mozzilli1,2, Danton Matheus de Souza1,3, Milena Santos de Oliveira1
1Universidade de São Paulo. São Paulo, São Paulo, Brazil.
Objectives:
to understand the experience of children/adolescents undergoing cancer treatment, their families and healthcare professionals with the educational book "Guia Beaba do Câncer".
Methods:
this is an exploratory, qualitative study, based on Symbolic Interactionism. Data collection was conducted online with nine children/adolescents with cancer, nine family members, and nine healthcare professionals. Semi-structured interviews were conducted, recorded, and transcribed, and analyzed using inductive thematic analysis.
Results:
two categories emerged: 1) Reinterpreting words: enhancing children/adolescents' understanding of cancer with the educational book; and 2) "A watershed moment": the educational book as a way of connecting family members to the world of cancer and professionals with children.
Final Considerations:
the educational book was recognized for its playful and accessible language, promoting the redefinition of experiences and symbols related to the experience of cancer, in addition to demystifying information, reducing negative reactions, and disseminating knowledge.
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