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Published on: March 14, 2025
Parents' Experiences of a Preventive Intervention for Children at Risk of Obsessive-Compulsive Disorder: A
Klara Olofsdotter Lauri1, Julia Peterson1, Johanna Segerström1
1Division of Psychology, Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden.
Parents found a brief online program for childhood obsessive-compulsive disorder (OCD) accessible and helpful for understanding symptoms and changing responses. Refinements could enhance its value for early OCD prevention in at-risk families.
Area of Science:
- Child and Adolescent Psychiatry
- Developmental Psychology
- Digital Health Interventions
Background:
- Childhood obsessive-compulsive disorder (OCD) often presents with significant delays in support, leading to prolonged impairment.
- Early intervention and preventive strategies are crucial for children exhibiting early obsessive-compulsive symptoms or those with a familial risk of OCD.
- A novel, brief online program was developed to support parents of children at elevated risk for OCD.
Purpose of the Study:
- To qualitatively explore parents' experiences engaging with a newly developed online preventive intervention for pediatric OCD.
- To understand how the digital format and content influenced parental engagement and perceived benefits.
- To identify potential areas for intervention refinement to optimize its effectiveness.
Main Methods:
- A qualitative study involving nine parents of children aged 5-11 years with varying risk profiles for OCD.
- Purposive sampling ensured representation of subclinical symptoms, familial risk, or both.
- Individual semi-structured interviews were conducted post-program completion and analyzed using reflexive thematic analysis.
Main Results:
- Parents highlighted the digital, flexible format as "Accessibility and design features facilitating engagement," reducing practical barriers and integrating the program into daily life.
- Parents reported "Changes in understanding and parental responses," including altered interpretations of early OCD behaviors and family accommodation, alongside modified parental reactions.
- The online program was perceived as accessible, relevant, and supportive in enhancing parental understanding and behavioral responses.
Conclusions:
- The online preventive program is perceived positively by parents for its accessibility and impact on understanding and responding to early OCD symptoms.
- Recommendations for intervention refinement include extending program duration, adding more in-depth content, and clarifying focus on children with early OCD symptoms.
- These refinements aim to strengthen the program's utility as an early preventive measure for families at risk of pediatric OCD.
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