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Evaluation of the Quality of Online Resources for Scanxiety: YouTube and Major Websites
Janet Lee1, Sofia Zahid2, Christopher Petillo2
1Department of Hematology Oncology, NYU Langone Long Island Hospital, 120 Mineola Blvd Suite 500, Mineola, NY, 11501, USA. janulee720@gmail.com.
Abstract:
Scans constitute an important role in cancer management. "Scanxiety", or scan-associated anxiety, is commonly experienced by patients undergoing cancer-related scans. Although more patients are turning to the internet and social media platforms such as YouTube for health information, few studies have evaluated the scanxiety content presented in these online resources. This study aims to evaluate YouTube videos and webpages available to patients relating to scanxiety. YouTube was searched using pre-defined scanxiety search terms and a Google search analysis for the term scanxiety was carried out and results from the first two pages were collected in August 2024. YouTube videos and webpages were evaluated using the validated DISCERN quality criteria for consumer health information and the Agency for Healthcare Research and Quality Patient Education Materials Assessment Tool (PEMAT). To assess accessibility of reading content, the Flesch-Kincaid reading level was determined for each webpage. Three independent reviewers performed video and webpage analysis. There were 82 videos and 18 webpages included in the analysis. Videos had a mean independent-reviewer rated quality DISCERN score of 1.8 out of 5, which was between low and moderate quality. Websites showed a higher mean quality DISCERN score of 2.7 out of 5. Despite better quality of information, websites were written at a higher reading level than that of the general population, limiting accessibility. Both videos and webpages had low actionability as patient education materials. Efforts are needed to improve scanxiety-related patient education as the number of patients living with cancer and requiring cancer-related scans has significantly increased.
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