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Why Engage Communities in Biomedical Research?
1Clinical Center Department of Bioethics, NIH, Bethesda, Maryland, USA.
Bioethics
|July 16, 2026
Summary
Community engagement in biomedical research should prioritize adding value, focusing on health gains rather than seeking permission. This approach enhances research respect, empowerment, and translation into tangible health benefits.
Area of Science:
- Biomedical Research Ethics
- Community-Based Participatory Research
Background:
- Community engagement is a valued component of biomedical research.
- The relative importance of various rationales for engagement remains unclear.
Purpose of the Study:
- To critically evaluate the primary objectives and value proposition of community engagement in biomedical research.
- To advocate for a reframing of community engagement towards demonstrable value addition.
Main Methods:
- Conceptual analysis and argumentation.
- Review of existing literature on community engagement rationales.
Main Results:
- Community engagement should primarily be viewed as a means to add value to research, not merely to obtain permission.
- Engagement can enhance research respect, empowerment, and translational success.
Conclusions:
- The principal focus of community engagement should be on achieving tangible health gains.
- Shifting the focus to health outcomes maximizes the impact and justification for community involvement in research.
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