Related Experiment Video
Updated: Aug 6, 2026
06:58
An Application for Pairing with Wearable Devices to Monitor Personal Health Status
Published on: February 3, 2022
A Personal Health App and Wearable Co-Design Framework for Rare and Complex Diseases: User-Centered, Collaborative
Sarah Margaret Goodday1,2, Emma Karlin2, Madeleine Sorensen2
1Department of Psychiatry, University of Oxford, Oxford, United Kingdom.
JMIR Mhealth and Uhealth
|July 20, 2026
Summary
Co-designing personal health apps with patients for rare diseases yields valuable feedback for development. This framework and prototype apps can improve symptom communication and management for complex conditions.
Area of Science:
- Digital Health
- Human-Computer Interaction
- Patient-Centered Care
Background:
- Personal digital health technology adoption is limited.
- Co-creating solutions with end-users is crucial for clinical success.
Purpose of the Study:
- To describe an end-user co-design framework for developing personal health apps.
- To create 5 prototype apps for patients with rare or complex diseases.
Main Methods:
- A patient-led, user-centered methodology was employed.
- Multidisciplinary teams, including patients, developed 5 prototype apps.
- Usability beta testing with end-users and wearable devices informed feedback collection.
Main Results:
- A core goal was enabling users to track symptoms and health measures.
- High enrollment (94-100%) and retention (92.2-100%) were observed.
- User feedback focused on customization, with heterogeneous desires for symptom display.
Conclusions:
- Significant upfront investment in co-design yields rich user feedback.
- The study provides a co-design framework and open-source app prototypes.
- These resources can enhance understanding and management of rare/complex diseases.
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