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Estimating the Lifetime Informal Care Costs in Stroke: A Model-Based Analysis
Neha Das1, Paul A Agius2,3,4, Peter Lee5
1Deakin Health Economics, School for Health and Social Development, Institute of Health Transformation, Geelong, Australia.
European Journal of Cardiovascular Nursing
|July 21, 2026
Summary
Informal care costs for stroke survivors are substantial, varying by country. Understanding these costs is crucial for developing effective stroke management strategies and healthcare policies.
Area of Science:
- Public Health
- Health Economics
- Neurology
Background:
- Stroke is a leading cause of chronic disability worldwide.
- Caregivers provide essential support to stroke survivors, impacting healthcare costs.
- The economic burden of informal care in stroke is not fully understood.
Purpose of the Study:
- To evaluate the lifetime cost of informal care for stroke survivors.
- To identify factors influencing the duration and cost of informal care.
- To analyze international variations in informal care costs using AVERT trial data.
Main Methods:
- A Markov model was employed for cost and clinical consequence simulation.
- Data from the A Very Early Rehabilitation Trial after stroke (AVERT) and literature were utilized.
- The opportunity cost method was used to calculate informal care costs, with sensitivity analysis performed.
Main Results:
- Lifetime informal care costs varied significantly across five countries: Australia (US$46,588), Malaysia (US$19,095), New Zealand (US$41,186), Singapore (US$72,931), and the UK (US$76,925).
- Costs were presented per life year, highlighting differences in resource utilization and economic impact.
- The study identified key cost drivers and variations in informal care provision.
Conclusions:
- Informal care represents a significant economic burden in stroke management.
- Policymakers and healthcare innovators should consider informal care costs in stroke care planning.
- Further research into factors affecting informal care is needed to optimize stroke survivor outcomes and support systems.