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Transitional care in pediatric inflammatory bowel disease: current strategies and future directions - a narrative

Pawel Rucinski1, Katarzyna Akutko1, Tomasz Pytrus1

  • 12nd Department and Clinic of Paediatrics, Gastroenterology and Nutrition, Medical University of Wroclaw, Poland.

Przeglad Gastroenterologiczny
|July 22, 2026
PubMed

Insights

Structured transition programs significantly improve outcomes for pediatric inflammatory bowel disease (IBD) patients moving to adult care. Despite proven benefits, formal protocols are often lacking, highlighting a need for standardized approaches.

Area of Science:

  • Pediatric Gastroenterology
  • Adult Gastroenterology
  • Healthcare Transition

Background:

  • Approximately 25% of inflammatory bowel disease (IBD) cases begin in childhood.
  • Pediatric-onset IBD presents differently than adult-onset disease.
  • Transitioning from pediatric to adult healthcare is a critical juncture for young IBD patients.

Purpose of the Study:

  • To review the literature on structured transition programs for pediatric IBD patients.
  • To identify barriers and facilitators to successful healthcare transition.
  • To highlight the importance of standardized, patient-centered transition protocols.

Main Methods:

  • Literature review of PubMed, Scopus, and Web of Science databases.
  • Analysis of articles published within the last 6 years.
  • Synthesis of findings regarding transition program effectiveness and challenges.

Main Results:

  • Structured transition programs are associated with improved adherence, reduced relapse rates, and fewer hospitalizations.
  • Many healthcare centers lack formal transition protocols.
  • Barriers include insufficient provider training, poor inter-team communication, and resource limitations.
  • Digital health tools and tailored education show promise in overcoming gaps.

Conclusions:

  • Standardized, evidence-based transition protocols are essential for young adults with IBD.
  • A multidisciplinary, patient-centered approach is crucial for managing complex medical and psychosocial needs.
  • Future research should explore digital interventions, long-term outcomes, and cost-effectiveness.

Keywords:
Crohn’s diseaseinflammatory bowel diseasetransitional careulcerative colitis

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