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Published on: July 31, 2017
A mixed-methods feasibility pilot study of a psychoeducation program for caregivers of autistic children with type 1
Jessica Stacey1, Hayley Thompson2, Chris Ashwin1
1Department of Psychology, University of Bath.
Introduction:
Autism spectrum disorder is more prevalent in children with Type 1 diabetes (T1D) than the general population, and autistic children with T1D encounter additional challenges compared with children with either condition alone. This presents unique challenges for their caregivers, and key models emphasize the need for the expansion of social networks to support caregivers and improve their physical and mental health. The present study aimed to evaluate the feasibility of a psychoeducation compassion-focused therapy (CFT)-based program developed for caregivers of autistic children with T1D.
Method:
A total of 11 caregivers attended the program, delivered by an assistant psychologist and trainee clinical psychologist (both English-speaking), which included three 90-min psychoeducation workshops utilizing CFT principles to target caregivers' specific needs. Feasibility was evaluated using recruitment, attendance, retention, and data completion metrics, and a thematic analysis was completed on qualitative data collected in August 2023 from seven participants (six mothers and one grandmother).
Results:
The thematic analysis developed five themes, including perceived value from peer support, gaining knowledge, developing coping skills, managing emotional states, and long-term peer support. The metrics related to recruitment, attendance, and retention supported the feasibility of program delivery, along with moderate feasibility for research data collection.
Discussion:
The findings offer evidence for the feasibility of delivering the psychoeducation CFT-based program within U.K. health care services and perceived benefits in social support, well-being, and self-efficacy, which reflects the perceived usefulness and appropriateness of the program to the participants. Further research is required to improve data collection procedures and evaluate program effectiveness. (PsycInfo Database Record (c) 2026 APA, all rights reserved).