Expert-Led Virtual Support for Vulvar Lichen Sclerosus: A Randomized Controlled Trial

Area of Science:

• Dermatology
• Gynecology
• Psychosocial Health

Background:

• Vulvar lichen sclerosus (VLS) is a chronic inflammatory condition impacting quality of life (QOL).
• Psychosocial support for VLS is limited, with current resources often lacking evidence-based structure.
• Existing support often relies on social media, potentially missing expert guidance.

Purpose of the Study:

• To assess if a virtual support group led by specialists improves QOL in women with VLS.
• Evaluate the impact of expert-facilitated online sessions on patient well-being.

Main Methods:

• A randomized controlled trial included women aged 18+ with VLS.
• The intervention group attended 3 monthly virtual support sessions led by a dermatologist and urogynecologist.
• Quality of Life was measured using the Vulvar Quality of Life Index (VQLI) and analyzed via mixed-effects linear regression.

Main Results:

• Participants in the expert-led virtual support group showed significantly greater improvement in VQLI scores compared to the control group.
• The intervention group shifted from moderate to mild QOL impact, with improvements across all VQLI domains.
• Qualitative feedback indicated that expert facilitation empowered patients and facilitated knowledge sharing.

Conclusions:

• Expert-led virtual support groups can be an impactful and accessible addition to VLS treatment.
• These groups offer a scalable model for enhancing psychosocial support for chronic conditions.
• Virtual support empowers patients and addresses unmet needs for information and community.