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The health management pathway of breast cancer patients: an exploratory study using patient journey mapping
Mengya Shen1,2, Yiwei Shen2, Yanghong Gao2
1The Fourth School of Clinical Medicine, Zhejiang Chinese Medical University, Hangzhou First People's Hospital, Hangzhou, Zhejiang, China.
Objective:
This study aimed to identify the multidimensional needs in health management for breast cancer patients using patient journey mapping in order to provide insights for optimizing healthcare experiences and comprehensive care throughout the treatment journey.
Methods:
A qualitative descriptive study was conducted through semi-structured interviews with breast cancer patients recruited from a tertiary Grade A hospital in Hangzhou, China, from October 2024 to January 2025. Thematic content analysis was employed to analyze the interview transcripts, and patient journey mapping methodology was utilized to visualize and interpret the healthcare management process.
Results:
A total of 12 breast cancer patients participated in in-depth interviews. Thematic content analysis revealed 38 distinct health management needs across multiple domains, including but not limited to early screening, diagnostic procedures, information acquisition, treatment decision-making, rehabilitation exercises, complication management, body image concerns, social adaptation, intimate relationships, and fertility preservation. The patient journey map was developed using the treatment timeline as the horizontal axis, incorporating three essential dimensions: health management processes, emotional fluctuations, and significant pain points. This comprehensive visualization outlined the stage-specific trajectories of patients' experiences and behavioral patterns throughout the disease continuum.
Conclusion:
This study demonstrated that the health management needs of breast cancer patients are multidimensional and change throughout the disease trajectory. The health management journey indicated both longitudinal complexity and stage-specific characteristics. The developed patient journey map can serve as a valuable visual tool for healthcare providers to better understand patients' evolving needs across different disease phases. This innovative approach facilitates the delivery of personalized and precision care, enables optimal allocation of health management resources, and ultimately enhances patients' overall treatment experience and quality of life.
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