Identifying patient-centered support needs in aortic aneurysm care

Area of Science:

• Cardiology
• Psychology
• Behavioral Science

Background:

• Thoracic aortic aneurysm (TAA) poses significant medical and psychosocial challenges.
• Understanding the supportive care needs of TAA patients is crucial despite medical advancements.

Purpose of the Study:

• To identify the psychosocial and behavioral supportive care needs and priorities of individuals living with TAA.
• To assess patient interest, attendance likelihood, and barriers to various supportive care domains.

Main Methods:

• 106 patients with TAA completed a Needs Evaluation survey.
• Participants were grouped by treatment (surgery vs. surveillance) and distress severity (high vs. low).
• The Depression Anxiety Stress Scales (DASS-21) was used to assess distress levels.

Main Results:

• Strong patient interest (≥80%) in physical activity, sleep, and stress management programs.
• Significant gap between perceived helpfulness and willingness to attend, with distance and time as primary barriers.
• Patients with higher distress were more likely to engage with psychological and symptom-management services.

Conclusions:

• TAA patients show consistent interest in psychosocial and behavioral interventions focused on stress, sleep, and activity.
• Structural and motivational barriers impede participation in supportive care programs.
• Integrating accessible programs into routine TAA care can improve patient engagement and quality of life.