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Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
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Supporting the Caregivers of Children With Developmental Disabilities in a Low-Resource Setting: What Are Their
Doreen Asantewa Abeasi1, Nokuthula Gloria Nkosi2
1Department of Nursing and Midwifery, University of Skills Training and Entrepreneurial Development, Mampong, Ghana.
Background:
Caregivers of children with developmental disabilities (DD) often face unmet needs that affect caregiving. This study explored the needs of such caregivers.
Methods:
A descriptive qualitative design was employed for this study. Caregivers of children with DD attending the Neurodevelopmental Clinic at Korle-Bu Teaching Hospital were purposively selected. Data were collected through semi-structured, in-depth interviews until saturation was achieved with fourteen (14) participants. The interviews were conducted between October 2021 and January 2022, and data were analysed using thematic analysis.
Results:
Four themes emerged: informational and training support, financial support, psychospiritual support and social support needs. Caregivers required comprehensive information and practical skills, financial assistance to meet care demands, psychological counselling and spiritual guidance to strengthen resilience and support from family, friends and community networks to ease caregiving burdens.
Conclusion:
Caregivers of children with DD have diverse unmet needs. Policies and programmes addressing these needs are essential to improve caregiver well-being and quality of life.
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