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Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
Published on: July 27, 2018
A Nursing Homecare Data Science Investigation Using "Persons with ALS" (PALS) Electronic Health Records (EHRs)
Sally Remus1, Lorie Donelle1, Michael Bauer2
1Arthur Labatt Family School of Nursing, Faculty of Health Sciences, Western University, London, ON Canada.
Summary
Data science in nursing research identified key factors predicting homecare needs for persons with ALS (PALS). This analysis of electronic health records (EHRs) helps ensure safe, sustainable care at home.
Area of Science:
- Data science applications in healthcare
- Nursing informatics and big data analytics
- Knowledge discovery in databases (KDD)
Background:
- Advancing healthcare research through data science insights from big data.
- Limited engagement of Canadian nurse researchers in data science.
- Study initiated to address the gap in Canadian nursing research.
Purpose of the Study:
- Investigate homecare electronic health records (EHRs) for persons with ALS (PALS).
- Identify care-related factors influencing PALS' preferences and ability for safe home support.
- Utilize data science to understand homecare needs in neurodegenerative diseases.
Main Methods:
- Retrospective secondary analysis of integrated EHR data (clinical assessments and administrative data).
- Utilized a nursing informatics Data, Information, Knowledge, Wisdom (DIKW) framework.
- Employed Knowledge Discovery in Databases (KDD) methodology with logistic regression to model institutionalization risk factors.
Main Results:
- Generated five significant models predicting PALS institutionalization status with comparable performance.
- Final model identified six key factors (four disease-related, two assessment measures) predicting institutionalization.
- MAPLe and CHESS assessment measures strongly predicted institutionalization and caregiver burden.
Conclusions:
- Big data science offers a transformative approach for nurse researchers.
- Enhances knowledge development for high-quality, sustainable healthcare delivery.
- Fulfills the intended benefits of electronic health records (EHRs) for patient care.
Related Concept Videos
01:29Documentation in Long-Term and Home Healthcare Setting
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Long-Term Care Facilities
Long-Term Care Facilities
01:05Data Collection III
The physical assessment examines the patient for objective data that defines the patient's condition, and aids in formulating the nursing care plan. The purpose of physical assessment is a health status appraisal, which includes identifying health problems, and establishing a database for nursing intervention.
The principles to begin the physical assessment include conducting a comprehensive or problem-related history in a quiet, well-lit room, emphasizing privacy and comfort for the patient.
The principles to begin the physical assessment include conducting a comprehensive or problem-related history in a quiet, well-lit room, emphasizing privacy and comfort for the patient.
01:29Data Collection II
The nursing history captures and records the patient's health status, so that a care plan evolves to meet the patient's individual needs. The nursing health history is a part of the initial assessment. A comprehensive history covers all health dimensions and plays a significant role in the assessment process. A comprehensive history includes the patient's biographical information, reasons for seeking health care, expectations, present and past health history, medications, and family,...
01:30Methods of Documentation VII: EMR
Electronic Medical Records (EMRs) primarily center around electronically documenting patients' health information within a single healthcare organization or practice. They contain essential clinical data related to a patient's medical history, diagnoses, medications, treatment plans, lab results, and other pertinent information relevant to the specific encounter or episode of care. EMRs are designed to streamline documentation and workflow processes within individual healthcare settings,...
01:10Documentation of Nursing Diagnosis
The nurse documents nursing diagnoses and enters them into the patient record. The identified patient's nursing diagnosis is either written out with a plan of care or entered into the electronic health record.
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In some settings, data-driven computerized decision support systems are in place, allowing for more accurate nursing diagnoses. The database within one of these systems includes diagnostic labels defining characteristics, activities, and indicators for nursing. A nurse enters assessment...