Exploring the Priorities for Home Self-Management Among Patients with Interstitial Lung Disease: A Mixed-Methods...

Area of Science:

• Pulmonology
• Nursing Science
• Health Psychology

Background:

• Interstitial lung disease (ILD) presents complex challenges for patients.
• Effective self-management is crucial for improving quality of life in ILD patients.
• Understanding patient-specific needs is key to optimizing continuing care.

Purpose of the Study:

• To analyze the self-management needs of patients with interstitial lung disease (ILD).
• To clarify the types and characteristics of these needs.
• To provide a basis for personalized continuing care plans by nursing staff.

Main Methods:

• Q-methodology was employed, combining semi-structured interviews and literature review.
• A Q-set of statement items was developed from qualitative data.
• Factor analysis of Q-sorts from 15 ILD patients identified self-management patterns.

Main Results:

• Four distinct types of home self-management needs were identified in ILD patients.
• These types varied in symptom management, information preferences, and psychological rehabilitation needs.
• Common core needs were shared across all identified patient types.

Conclusions:

• Interstitial lung disease patients exhibit both common and individualized self-management requirements.
• A one-size-fits-all approach to ILD self-management is not effective.
• Nurses must create personalized continuing care plans for precise and adaptable patient support.