Related Experiment Video
Updated: Aug 5, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
Does Honouring Assent Really Respect the Preferences and Values of Research Participants with Intellectual and
Mary McBride1, Abraham Graber2
1School of Health and Rehabilitation Sciences, The Ohio State University, 453 W. 10th Avenue, Columbus, OH, 43210, USA.
None:
Processes of representative consent and individual assent for those with intellectual and developmental disabilities (IDD) in the research context are intended to protect such individuals from the power imbalance between participants and researchers. However, these protections often lead to exclusionary practices, leaving those with IDD without the opportunity to reap the same benefits from research as other, less vulnerable populations. Current conversations regarding research ethics heavily emphasize relying on participant assent as the solution to exclusionary research practices, as obtaining assent best respects the preferences and values of participants. In response to such arguments, we propose that the extent to which assent serves as a remedy to issues of those with IDD in research is unclear.
Related Concept Videos
Ethics in Research
Intellectual Disability
Specialized Care Centers and Settings-II
Rural health centers are specialized care facilities in remote locations with very few medical personnel. The primary care providers who run the centers are mostly Registered Nurse Practitioners. Here, emergency treatment is provided to critically ill or injured patients before they are transferred to the closest hospital. Fortunately, due to advancement in technology, many rural healthcare facilities and professionals have easy access to diagnostic and treatment...
Specialized Care Centers and Settings-I
Daycare centers
They provide several functions. Some facilities care for healthy newborns and children whose parents work, while others are medically focused and care for...
EPS and iPS Cells in Disease Research
Decision Making: P-value Method
First, a specific claim about the population parameter is proposed. The claim is based on the research question and is stated in a simple form. Further, an opposing statement to the claim is also stated. These statements can act as null and alternative hypotheses: a null hypothesis would be a neutral statement while the alternative hypothesis can have a...

