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Building Bridges in Palliative Care: Perspectives on a Community-Health Information Exchange
Lauren Wan-Sai-Cheong1,2, Courtney Petruik3, Katrina Milaney2
1Department of Psychology, University of Windsor, Windsor, Ontario, Canada.
Palliative Medicine Reports
|August 1, 2026
Summary
Community-health information exchanges (CHIEs) can improve palliative care access for those experiencing homelessness. Careful implementation focusing on equity, consent, and trust is crucial to avoid reinforcing existing inequities.
Area of Science:
- Health Services Research
- Palliative Care
- Health Informatics
Background:
- Homelessness presents significant barriers to accessing palliative and end-of-life care.
- Service providers face communication challenges across agencies, hindering client connections to resources.
- Community-health information exchanges (CHIEs) offer a potential solution for improved communication and care coordination.
Purpose of the Study:
- To explore the potential of CHIEs to enhance palliative care access for individuals experiencing homelessness.
- To understand service provider and recipient perspectives on implementing CHIEs in palliative care.
Main Methods:
- Qualitative study involving interviews with 11 service providers and 7 service recipients.
- Snowball sampling used for participant recruitment from a mobile palliative care team.
- Thematic analysis of interviews and construction of a hypothetical vignette to illustrate CHIE functionality.
Main Results:
- CHIEs show potential benefits for palliative care, but success depends on organizational readiness and system design.
- Key themes include the importance of equity, consent, and trust in information exchange.
- Barriers identified include service provision silos and labeling of individuals within the system.
Conclusions:
- CHIEs can improve palliative care access and continuity for vulnerable populations if guided by consent and equity.
- Careful attention to privacy, power dynamics, and avoiding labeling is essential to prevent reinforcing inequities.
- CHIEs hold promise for more personalized end-of-life care for individuals with complex needs.
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