Transitions in Glomerular Disease

Area of Science:

• Nephrology
• Pediatric to Adult Healthcare Transition
• Chronic Kidney Disease Management

Background:

• Adolescents and young adults (AYA) face complex challenges transitioning from pediatric to adult healthcare.
• Transitioning AYA with chronic conditions, especially rare diseases like glomerular disease, requires careful management.
• Variability in resources and disease-specific factors complicate the transition process.

Purpose of the Study:

• To highlight the vulnerabilities and challenges in health care transition (HCT) for AYA with glomerular disease.
• To identify key components for a successful HCT process in this population.
• To inform the development of structured transition programs.

Main Methods:

• Review of current challenges and best practices in AYA healthcare transition.
• Analysis of factors contributing to successful or unsuccessful HCT in glomerular disease.
• Synthesis of recommendations from professional societies.

Main Results:

• Health care transition (HCT) is a vulnerable period for AYA with glomerular disease, increasing risks of adverse outcomes.
• Dedicated transition clinics and structured programs improve HCT success.
• Key elements for successful transition include preparation, cross-provider communication, and patient/provider support.

Conclusions:

• A structured, intentional HCT process is crucial for AYA with glomerular disease.
• Effective transition requires preparation, communication, and support systems.
• Developing transition toolkits and programs can aid in managing glomerular disease through HCT.