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Mapping Phase-Specific Supportive Care Needs to Inform Care Improvement in Temporary Ostomy Patients: A Qualitative
Wanwan Fang1, Yiming Shi2, Birong Qi3
1Department of Nursing, Zhongshan Hospital, Fudan University, Shanghai, People's Republic of China.
Journal of Clinical Nursing
|August 1, 2026
Summary
This study maps the patient journey for temporary ostomies, revealing phase-specific needs and pain points. The findings guide improved nursing care and patient experience during ostomy transitions.
Area of Science:
- Nursing Care
- Patient Experience
- Qualitative Research
Background:
- Temporary ostomies present unique challenges for patients during their transition.
- Understanding patient experiences is crucial for effective nursing interventions.
Purpose of the Study:
- To explore temporary ostomy patient experiences and needs.
- To develop a patient journey map for nursing practice.
Main Methods:
- Descriptive qualitative study with 19 patients in Shanghai.
- Semi-structured interviews and framework analysis.
- Synthesized into a visual patient journey map.
Main Results:
- Identified four journey phases: preoperative, early postoperative, transitional care, and stoma reversal waiting.
- Highlighted stage-specific behaviors, emotions, needs, and pain points.
- Patient journey map visualizes experiences from stoma creation to reversal.
Conclusions:
- Temporary ostomy patients have phase-specific supportive care needs.
- The patient journey map provides insights for enhancing care.
- Recommends digital follow-up, family-centered strategies, and risk communication.
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