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Enhancing Caregiver Personhood: An Emerging Concept From Nursing Practice
Danielle Granderson1, Howard K Butcher1, Patricia Liehr1
1Christine E. Lynn College of Nursing, Florida Atlantic University, Boca Raton, FL, USA.
Nursing Science Quarterly
|August 3, 2026
Summary
This study introduces "enhancing caregiver personhood" to improve understanding of family caregiving for medically complex children in home health nursing. It highlights the crucial role of caring in the family-nurse partnership.
Area of Science:
- Nursing
- Pediatric Home Health
- Family Caregiving
Background:
- Family caregiving for children with medical complexities presents unique challenges.
- Understanding the caregiver's experience is crucial in pediatric home health nursing.
Purpose of the Study:
- To develop and define the concept of "enhancing caregiver personhood."
- To deepen the understanding of family caregiving within pediatric home health nursing.
Main Methods:
- Concept development guided by Liehr and Smith's process.
- Grounded in Boykin and Schoenhofer's theory of nursing as caring.
- Utilized a practice story, literature review, and interviews for refinement.
Main Results:
- Synthesized core qualities into a concept story.
- Visualized the concept through a conceptual model.
- Emphasized theory-guided nursing practice and the centrality of caring.
Conclusions:
- The concept of enhancing caregiver personhood offers a framework for understanding family caregiving.
- Caring is central to sustaining the family-nurse partnership in pediatric home health.
- Theory-guided practice is essential for effective family-centered nursing care.
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