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A Standardized Obstacle Course for Assessment of Visual Function in Ultra Low Vision and Artificial Vision
Published on: February 11, 2014
Functional vision promotes quality of life and socio-emotional functioning in visually impaired children and
Guido Catalano1,2, Federica Morelli1,2,3, Serena Grumi4
1Department of Brain and Behavioural Sciences, University of Pavia, Pavia, Italy.
Insights
Children with visual impairment (VI) generally have good autonomy and quality of life. However, autonomy scores in adolescents with VI were lower, highlighting its importance in rehabilitation for psychological well-being.
Area of Science:
- Ophthalmology
- Developmental Psychology
- Rehabilitation Medicine
Background:
- Congenital and early acquired visual impairment (VI) can negatively affect development, social integration, academic progress, autonomy, and quality of life (QoL).
- There is growing consensus on including these functional domains in the assessment and rehabilitation strategies for pediatric VI.
Purpose of the Study:
- To create a comprehensive profile of functioning, autonomy, QoL, and emotional-behavioral status in a large cohort of children with VI.
- To investigate the relationship between autonomy, QoL, and emotional-behavioral outcomes in pediatric VI.
Main Methods:
- A cross-sectional study involving 91 caregivers of children (aged 6-18) with VI across 5 specialized centers.
- An online survey utilized validated questionnaires to assess autonomy (Patient Reported Outcome Measure - PROM), socio-emotional/behavioral problems, and QoL.
- Clinical and socio-demographic data were also collected, with participants divided into two age groups: 6-10 years and 11-18 years.
Main Results:
- Both age groups demonstrated medium-high average autonomy levels and appropriate socio-emotional, behavioral, and QoL scores.
- Adolescents (11-18 years) reported lower autonomy scores compared to younger children (6-10 years).
- Autonomy scores were significantly correlated with better QoL and fewer internalizing and externalizing socio-emotional and behavioral problems.
Conclusions:
- Autonomy is a crucial factor in the rehabilitation of children with VI, significantly impacting their psychological well-being.
- Assessing and supporting autonomy should be a key component of comprehensive rehabilitation programs for pediatric visual impairment.
- Interventions aimed at enhancing autonomy may lead to improved quality of life and reduced behavioral issues in visually impaired children.
Abstract:
Vision plays a pivotal role in development. Congenital and early acquired visual impairment (VI) may adversely impact several domains related to everyday functioning, such as social and academic inclusion, autonomies and quality of life. In recent years, the inclusion of these dimensions as key targets of the assessment and re-habilitation of paediatric VI has received increasing consensus. This cross-sectional study enrolled patients attending 5 centres specialized in paediatric VI care and aimed to draw an integrated profile of functioning, autonomies, quality of life and emotional-behavioural domains in a large cohort of children with VI. 91 caregivers of as many visually impaired children (age range 6-18, mean age 11.05 years, 47 females) - split into two age groups: 6-10 years; 11-18 years - were enrolled in an on-line survey including three validated questionnaires to assess children's: a) autonomies, via a Patient Reported Outcome Measure (PROM) tool; b) socio-emotional and behavioural problems; c) quality of life (QoL). Clinical and socio-demographic information were also collected. Both age groups showed medium-high average level of autonomy in every investigated area as well as appropriate socio-emotional, behavioral, and QoL scores. Interestingly, adolescents showed lower scores in autonomies compared to the younger age group overall. Autonomy score significantly associated with better QoL and less socio-emotional and behavioural problems, both internalizing and externalizing. Our results highlight the importance of assessing autonomy in the context of paediatric VI re-habilitation as they largely associate and potentially impact on young patients' psychological well-being.
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