The lived complexity of phantom limb telescoping: insights from a qualitative study

Area of Science:

• Neuroscience
• Psychology
• Rehabilitation Medicine

Background:

• Phantom limb telescoping is an under-researched phenomenon post-amputation.
• Previous studies focused on quantitative and neurophysiological aspects, neglecting lived experiences.

Purpose of the Study:

• To explore the lived experience of phantom limb telescoping in individuals with limb loss.
• To understand participants' interpretations, emotional responses, and adaptation to telescoping.
• To investigate the impact of telescoping on post-amputation adjustment.

Main Methods:

• Qualitative study using semi-structured interviews with 12 participants (11 men, 1 woman; mean age 50.1 years).
• Participants had a mean of 3.9 years post-amputation.
• Inductive thematic analysis within a constructionist framework was employed.

Main Results:

• Four themes emerged: heterogeneity of experience, telescoping as unusual but not distressing, social/emotional consequences, and adaptation to an altered phantom limb.
• Participants reported greater concern with phantom limb pain and post-amputation adjustment than telescoping itself.
• Telescoping experiences varied, influenced by psychological and social factors; discussion with healthcare providers was infrequent.

Conclusions:

• Phantom limb telescoping, while varied, is not typically distressing, with patients prioritizing pain and adaptation.
• Education on telescoping post-amputation and open dialogue with healthcare providers can normalize the sensation and reduce uncertainty.
• Incorporating qualitative patient insights into rehabilitation can improve holistic post-amputation care.