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[Promoting self-help among family caregivers with a migration background: A qualitative study of self-help group
Valeria Schellenberg1, Kübra Annac2, Yüce Yilmaz-Aslan2
1Lehrstuhl für Versorgungsforschung, Fakultät für Gesundheit, Department für Humanmedizin, Universität Witten/Herdecke, Alfred-Herrhausen-Straße 50, 58455, Witten, Deutschland. valeria.schellenberg@uni-wh.de.
Background:
In Germany, most people in need of long-term care are cared for at home. Among people with a Turkish migration background, care is particularly often provided by family members. Although self-help groups offer valuable support, they are rarely utilized.
Objective:
Identification of strategies, barriers and support needs to enhance participation in self-help groups among family caregivers with a migration background.
Methods:
A total of 1029 providers of self-help groups were invited to participate in an online survey addressing structural characteristics, strategies to promote participation, perceived barriers and support needs. Closed questions were analyzed descriptively, while open-ended responses were examined using qualitative content analysis.
Results:
Data from 176 providers were available for the analysis and 44.9% reported actively involving family caregivers with a migration background. Frequent strategies included direct outreach through disseminators and cooperation with migrant organizations. Key barriers compromised language barriers (62.5%), lack of awareness of available services (56.8%) and cultural differences (48.9%). Important support measures included public outreach, network building and interpreting services.
Conclusion:
The results highlight the need for structural support and intercultural approaches to improve access to and sustained participation in self-help groups among family caregivers with a migration background.
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