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Preferred Language, Patient-Provider Interactions and Standardized Outcome Assessment in Patients With Pediatric
Ahmad Bakhsh1,2, Aditi Deokar2, Gabrielle Alonzi2
1Department of Pediatrics, Faculty of Medicine, University of Jeddah, Jeddah, Saudi Arabia.
Arthritis Care & Research
|August 6, 2026
Summary
Families with a language preference other than English (LPOE) initiated fewer communications with healthcare teams for juvenile idiopathic arthritis (JIA) or systemic lupus erythematosus (SLE). This disparity was more pronounced during the COVID-19 pandemic.
Area of Science:
- Pediatric Rheumatology
- Health Communication
- Health Equity
Background:
- Effective communication is crucial for families managing juvenile idiopathic arthritis (JIA) and systemic lupus erythematosus (SLE).
- Language preference other than English (LPOE) may impact patient-provider interactions and health outcomes.
Purpose of the Study:
- To investigate the association between LPOE and patient-provider communication frequency in JIA/SLE.
- To assess the impact of LPOE on standardized outcome assessments.
Main Methods:
- Retrospective cohort study of JIA/SLE patients (2016-2024) matched by language preference (LPOE vs. English language preference - ELP).
- Multivariable regression analysis compared communication rates, adjusted for disease severity and the COVID-19 pandemic.
- Evaluated insurance and Child Opportunity Index (COI).
Main Results:
- LPOE families initiated significantly fewer communications (aIRR 0.51) compared to ELP families.
- LPOE families initiated 0.18-fold fewer communications during the COVID-19 pandemic.
- Physician global visual assessment scale (PhVAS) completion was marginally lower in LPOE families (aOR 0.58).
Conclusions:
- Reduced communication frequency among LPOE families may contribute to health disparities in JIA/SLE care.
- Targeted outreach to families facing communication barriers is essential for equitable care.
- Addressing language barriers is critical, especially during healthcare system stress.
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