Caregivers' Perceptions of End-of-Life Care in Brazil: A Qualitative Systematic Review

to identify barriers and facilitators perceived by informal caregivers that impact care for adults and older adults at the end of life in Brazil.

a systematic review of qualitative studies, following the JBI model, with meta-aggregation analysis.

thirteen studies were included. Five synthesized findings were identified. Caregivers reported the following as positive aspects of end-of-life care: access to a skilled and caring multidisciplinary team, the presence of an informal and, especially, family support network, clear communication addressing end-of-life issues, the development of resilience, and support in beliefs and religions. Barriers identified included a lack of preparedness among professionals and in hospital settings to care for this population, and feelings of physical, psychological, and financial overload.

the findings have practical implications, allowing for the development of strategies to mitigate the difficulties faced by caregivers in the Brazilian context.