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Digital Patient-Controlled Follow-Up in Palliative Cancer Care: Protocol for a Mixed Methods Feasibility Study
Erik Torbjørn Løhre1,2,3, Morten Thronæs1,2,3, Hilde Hjelmeland Ahmedzai1
1Centre for Crisis Psychology, Faculty of Psychology, University of Bergen, Bergen, Norway.
JMIR Research Protocols
|August 11, 2026
Summary
This pilot study introduces a digital, patient-controlled follow-up for palliative cancer care, enhancing symptom monitoring and self-management. Findings will guide a future randomized controlled trial on this sustainable, patient-centered model.
Area of Science:
- Palliative Care
- Digital Health Interventions
- Cancer Patient Support
Background:
- Patient-centered care is crucial in palliative cancer care, emphasizing autonomy and shared decision-making.
- Traditional follow-up models may not meet the needs of cancer patients preferring home-based care.
- A digital, patient-controlled follow-up intervention was developed for an acute palliative care unit in Norway.
Purpose of the Study:
- Evaluate the feasibility and acceptability of a digital patient-controlled follow-up intervention.
- Assess study procedures for a future randomized controlled trial (RCT).
Main Methods:
- Mixed methods design with 20 patients over a 6-week intervention period.
- Weekly electronic symptom monitoring using the revised Edmonton Symptom Assessment System.
- Patient access to a website for self-management guidance and appointment booking.
- Quality of life assessment (EORTC QLQ-C15-Palliative) at baseline and post-intervention.
- Patient satisfaction questionnaires and semistructured interviews with patients/carers.
- Focus group with healthcare professionals to assess clinical feasibility.
Main Results:
- Pilot study findings will inform the design and feasibility of a future RCT.
- Recruitment is scheduled from October 2026 to April 2027.
- Data analysis, manuscript writing, and submission are anticipated by October 2027.
- The project is funded for 4 years, including the RCT.
Conclusions:
- Digital, need-based follow-up presents a sustainable, patient-centered model for palliative cancer care.
- Feasibility study results will guide the design of a definitive RCT to test the intervention's efficacy.
