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E-Patient Counseling Trial (E-PACO): Computer Based Education versus Nurse Counseling for Patients to Prepare for Colonoscopy
Published on: August 1, 2019
Development of an expert patient program for improving self-efficacy in surgical patients with advanced gastric
Xiaolu Yang1, Meiyu Jiang1, Wenhui Huang1
1Department of Gastrointestinal Surgery, Department of General Surgery, Guangdong Provincial People's Hospital (Guangdong Academy of Medical Sciences), Southern Medical University, Guangzhou, 510080, Guangdong, China.
Purpose:
Advanced gastric cancer (AGC) poses substantial postoperative challenges that require effective self-management. Although expert patient programs (EPPs) and peer-support approaches have been used in other conditions, an operational program tailored to Chinese surgical patients with AGC has not been established. This study aimed to develop an evidence-informed, disease-adapted EPP focused on postoperative self-efficacy and self-management in this population.
Methods:
A Consolidated Criteria for Reporting Qualitative Research (COREQ)-guided qualitative expert panel discussion study was conducted in April 2024 at a tertiary hospital in Guangzhou, China. Six purposively recruited experts in gastrointestinal oncology and oncology nursing participated. A preliminary EPP was drafted from a structured scoping literature review, evidence-to-mapping, and self-efficacy theory. The experts participated in two preplanned semi-structured focus-group rounds. Round 1 elicited item-by-item critique of program relevance, clarity, clinical accuracy, feasibility, safety, and cultural appropriateness. Feedback was analyzed using inductive thematic analysis and documented in a revision matrix. Round 2 reviewed the revised program and confirmed consensus.
Results:
The scoping review identified 19 relevant studies. Evidence mapping showed that existing peer-support and self-management interventions commonly addressed medical, role, and emotional management and used skills such as problem-solving, decision-making, resource use, patient-provider communication, action planning, and self-regulation. These elements were translated into a six-module preliminary EPP and a logic model linking AGC-specific postoperative challenges, program components, self-efficacy mechanisms, and intended proximal self-management capacities. Thematic analysis of expert feedback generated five refinement themes: simplifying theoretical and medical content, increasing experiential sharing by expert patients, strengthening practical guidance on red-flag symptoms, wound care, nutrition, and rehabilitation, incorporating family support, and improving flexible digital follow-up. In Round 2, all six experts endorsed the revised program.
Conclusions:
This study produced an evidence-informed, disease-adapted EPP through a transparent qualitative expert-panel process. The contribution lies not in proposing entirely new peer-support components, but in configuring established self-management and self-efficacy elements for the postoperative AGC context in China and documenting the consensus-based refinement process. The program requires patient acceptability, feasibility, and effectiveness evaluation before routine implementation.