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Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
Who are Adults with Developmental Language Disorder? Profiles from the Engage with Developmental Language Disorder
Jenny L Gibson1, Nicola Botting2, Ellie Barker3
1Faculty of Education, University of Cambridge, Cambridge, UK.
Developmental Language Disorder (DLD) affects adults, often presenting with word-finding difficulties and emotional challenges like anxiety and depression. Many adults with DLD remain undiagnosed, impacting their access to necessary support services.
Area of Science:
- Neurodevelopmental Disorders
- Speech and Language Pathology
- Adult Psychology
Background:
- Developmental Language Disorder (DLD) is a lifelong condition often overlooked in adulthood.
- Previous research highlights negative associations between DLD and adult life factors.
- Limited quantitative data exists on the adult DLD experience, hindering support.
Purpose of the Study:
- To explore the characteristics and mental health profiles of adults with DLD.
- To identify demographic features and language difficulties in adult DLD samples.
- To compare self-reported data from diagnosed adults and those with possible DLD.
Main Methods:
- Data collected from 92 adults via the Engage with Developmental Language Disorder (E-DLD) database.
- Participants completed screening questionnaires, demographic questions, and emotional health measures.
- Analysis included adults with a clinical DLD diagnosis and those scoring high on screening.
Main Results:
- The DLD sample (n=92) comprised predominantly women, with an average age of 37.
- Word-finding and expressive language were common difficulties; pragmatic challenges were higher in diagnosed cases.
- Adults with DLD reported significantly higher anxiety, depression, alexithymia, and lower self-efficacy than controls.
Conclusions:
- Adults with DLD are diverse, with a potential gender disparity in seeking diagnosis.
- High rates of emotional difficulties suggest significant unmet needs in the adult DLD population.
- Many adults with DLD may not have a formal diagnosis, limiting access to support.
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