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Quality of Life in Intensive Care Unit Survivors-Family Member Dyads: A Conceptual Framework and Longitudinal Study
Francesca Trotta1,2, Davide Bartoli3, Francesco Gravante4
1Unit of Anesthesia, Intensive Care and Pain Medicine, Sant'Andrea University Hospital, Rome, Italy.
Background:
Critical illness threatens the Quality of Life (QoL) of both ICU survivors and their family members through Post-Intensive Care Syndrome (PICS) and its family counterpart (PICS-F). These syndromes unfold within the ICU survivor-family member dyad, yet their dyadic interdependence and joint trajectories remain insufficiently explored.
Aim:
To develop a conceptual framework and study protocol for a longitudinal investigation of dyadic QoL in ICU survivor-family member dyads, with explicit attention to reciprocal interdependence over time.
Design And Methods:
A longitudinal study will enrol ICU survivor-family member dyads assessed at 1, 3, 6 and 12 months post-ICU discharge in two Italian ICUs. The 1-month timepoint captures early PICS and PICS-F manifestations while minimising post-discharge confounding. A qualitative phenomenological component will explore how survivorship is experienced within the dyad. Dyadic QoL trajectories will be examined using descriptive statistics, χ2 tests, Student's t-tests and Mann-Whitney U-tests. Longitudinal analyses will apply hierarchical linear models to capture trajectories over time. Qualitative data will be analysed manually following Cohen's hermeneutic phenomenological approach.
Conclusion:
This protocol advances the conceptualisation of post-ICU outcomes as dyadic and interdependent, integrating quantitative and qualitative evidence within a relational framework.
Relevance To Clinical Practice:
Findings will inform nurse-led follow-up interventions targeting ICU survivors and family members as an interdependent unit, supporting person- and family-centred care across the post-ICU trajectory.
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